This article involves issues dealing with the national system federall mandated to protect the civil rights of people with disabilities.

Web Site: http://www.protectionandadvocacy.com
 

A National Medicare Ombudsman Project-An Opportunity Missed
 

From 1999 to 2000, a demonstration project ($850,000) to develop a national ombudsman program for low-income Medicare beneficiaries was assigned by the Health Care Financing Administration (now the Centers for Medicare and Medicaid) to the National Association of Protection and Advocacy Systems, Inc. (NAPAS) in Washington, D.C. NAPAS is the membership association for the nationwide network of federally mandated disability rights agencies-the
Protection and Advocacy (P&A) System and Client Assistance Program (CAP) (with an annual budget of ~$100 million).

The purpose of the demonstration project was to enroll low-income Medicare beneficiaries, both senior citizens and beneficiaries with disabilities under 65 years, into their state Medicaid programs (also called the "dual eligibles). In 2000, only 5.2 million people from a total of ~16 million had enrolled in their state Medicaid program. These beneficiaries are particularly hard to reach for reasons, such as, cultural barriers, severe disabilities, administrative barriers to enrollment, cognitive impairments, and lack of knowledge about the availability of the benefit. The intent of the demonstration project was to design a national ombudsman program for Medicare beneficiaries as well as provide one-on-one counseling to low-income Medicare beneficiaries. The demonstration project was targeted both to senior
citizens and to beneficiaries with disabilities under 65 years who comprise the ~39 million Medicare (1999) beneficiary population.

Why is the dual eligible program important to Medicare beneficiaries? The Medicare beneficiary gets his/her Part B premiums ($54.00 in 2002) paid by their Medicaid programs as well as premiums and deductibles, depending on his/her annual income. State Medicaid programs pay for prescription drugs and Medicare does not. This is extremely important to beneficiaries with disabilities under 65 years who rely on their medication to prevent acute
care episodes with their chronic diseases. Many states have developed prescription drug assistance programs for their senior citizens but have, in many cases, excluded beneficiaries with disabilities under 65. Finally, access to durable medical equipment and other technologies are more readily available, and reimbursement is more flexible through the Medicaid program than that through Medicare.

The P&A system was unique because it had the capability of providing both consumer counseling and legal services under the same umbrella organization. The federal government provides information to beneficiaries in booklet form and on the Internet, but there is no organization currently who can interpret the information for beneficiaries, conform it to state law, regulations, and alternate state benefit programs, tailor it to each individual's income and social service benefit situation, inform Medicare beneficiaries of program and coverage changes, and assist beneficiaries who may be dropped by their Medicare+Choice plan of alternative health plans options. If the beneficiary encountered problems with Medicaid enrollment, then the P&A could have conducted administrative hearings to petition the state. In this manner, Medicare beneficiaries could make informed decisions about their health care
with use of information from an objective source and would have their legal rights protected as well.

What were some of the problems uncovered? In one state, the Medicaid program determined that it was paying Part B premiums for deceased beneficiaries and cleaned its computer data files thereby throwing many people off the program with no warning and no explanation to beneficiaries. One beneficiary was enrolled in the program but did not receive benefits for nearly two years. Medicaid applications were being lost because no one assigned a number to the application form for internal tracking. Information from the Medicaid program was not in an alternative format nor multiple languages. Beneficiaries did not want to go to their local Medicaid offices to complete applications due to the stigma involved.

Unfortunately, during the initial implementation phase of the demonstration project, I and other members of the disability community suspected that NAPAS may have been misusing public funds to the detriment of the demonstration project. Suspicions later led to the HHS OIG conducting a federal audit. The HHS OIG audited 25%, or $200,000, of the total $850,000. Of the 25%, the OIG recommended reimbursement for $135,371, or 67.6% of the 25% total project expenditures. The Administration on Developmental Disabilities within the
Administration on Children and Families will be taking final action on the findings by January 31, 2002. The web site for the audit report is http://oig.hhs.gov/oas/reports/region3/30100219.htm. The financial issues of this demonstration project may jeopardize the policy findings and the opportunity of the disability organization to participate in the implementation of programs to increase health care for these vulnerable Medicare beneficiaries.

For the disability community, this demonstration project exposed certain managerial and fiscal irregularities with the national network federally charged with protecting the civil rights of people with disabilities. Medicare beneficiaries are still being prevented from receiving health care benefits for which they are legally entitled under the dual eligible program.
 

Shelley McLane
Senior Health Policy Analyst
Location: Arlington, VA
 

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